Palliative Treatment Claims for Morgellon’s Disease Fiber Sores

October 8, 2022

Morgellon’s disease that occurs in some Lyme disease and chronic Lyme disease patients is a strange disorder marked, in part, by areas of the skin that have coarse fibers or sometimes small granules extruding from the skin. Attempts to pluck the fibers from the skin demonstrate fixation to the epidermis. Lesions are sometimes marked by red patches of excoriation of surrounding skin. Some original reports of this disorder were discounted as cases of delusional parasitosis. There are case reports of patients in such extreme distress that they have committed suicide to end their suffering.

Research is ongoing on the origins and course of the disease. One recent report implicated the presence of Aspergillus fumigatus.

Patients and physicians have undertaken searches for the best palliative techniques to manage the discomfort of the lesions, which can cause movement of the skin against clothing or bedding to be quite painful and distressing.

One simple protocol which anecdotally claims excellent resolution of the sores and fibers is listed below:

Apply one squirt of Ultra-Safe+ from SaferSoaps.com onto the fibers and gently massage into tissues. Use twice per day. Users claim that the soap product gradually softens and then dissolves the fibers, with some softening of the bristles noted after the first one or two applications.  After 7-10 days the fibers maybe degraded sufficiently to pluck with a tweezers or to remove with applying an adhesive such as a small Tegaderm or over-the-counter hair removal waxing tape to remove the degraded bristles with a minimum of discomfort.

If fibers are surrounded by excoriated skin, anecdotal reports say the patient may also start with or alternate with one or two drops of neem oil to promote epidermal healing, alternating with application of the Ultra-Safe+ product.  If the fibers are protruding from intact skin, one may use one drop of castor oil to the fibers to promote blood flow and general healing to the area while alternating with the Ultra-Safe+ product and neem oil.

The manufacturer of the the Ultra-Safe+ soap does not claim effectiveness for use in Morgellon’s disease. Editors have anonymously purchased a sample of the product. The label lists ingredients obtained from leafy green plants and fruit bearing plants as follows:

pure water
amino acids
minerals
enzymes
botanicals

There are no scientific studies to support these anecdotes. As the label does not specifically list the ingredients, it is not possible to ascertain the safety of using the product on the skin for an extended period of time. Use of any substance applied to the skin can cause allergic reactions of varying severity. Serious skin disorders should be evaluated and treated by physicians who are trained and licensed to do so.

Reference

Personal communication with treating M.D. physician